St. Baldrick’s Foundation Celebrates the Childhood Cancer STAR Act Signed into Law | U.S. Government

KeepHealthCare.ORG – St. Baldrick’s Foundation Celebrates the Childhood Cancer STAR Act Signed into Law | U.S. Government

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— WITH PHOTO — TO HEALTH, MEDICAL, AND NATIONAL EDITORS:

St. Baldrick’s Foundation Celebrates the Childhood Cancer STAR Act

Signed into Law

LOS ANGELES, June 5, 2018 /PRNewswire-USNewswire/ — The St.

Baldrick’s Foundation, the largest private funder of childhood cancer

research grants, is pleased to announce that the Childhood Cancer

Survivorship Treatment Access and Research (STAR) Act was signed into

law by President Donald Trump today after careful review and approval

by both the Senate and House.

After three years of anticipation from childhood cancer research

advocates, the Childhood Cancer STAR Act will finally be put into

motion, providing researchers with the critical funding needed to

advance pediatric cancer research and surveillance, work toward less

toxic treatments and provide enhanced resources for survivors.

“The STAR Act is a true testament to the dedication of St. Baldrick’s,

and its supporters and partners in the childhood cancer community to

create change for kids with cancer,” said Mike McCreesh, chairman of

the St. Baldrick’s board of directors. “This legislation will bring

hope to many families. We are grateful to our champions on the Hill

for their commitment to kids with cancer and we will continue to fight

together with them to ensure the STAR Act’s full funding and

implementation.”

The Childhood Cancer STAR Act will:

— Expand opportunities for childhood cancer research – The STAR Act

will authorize the National Cancer Institute (NCI) to expand existing

efforts to collect biospecimens for childhood cancer patients enrolled

in NCI-sponsored clinical trials, so researchers can better analyze

and compare clinical, biological and demographic information.

— Improve childhood cancer surveillance – The bill will support the

advancement of a national childhood cancer registry where childhood

cancer incidences can be documented, tracked and shared.

— Improve quality of life for childhood cancer survivors – As many as

two-thirds of childhood cancer survivors suffer from late effects of

their disease or treatment, including secondary cancers and organ

damage. This legislation will enhance research on the late effects of

childhood cancers and improve long-term care for childhood cancer

survivors.

The STAR Act also places at least one pediatric oncologist on the

National Cancer Advisory Board, giving childhood cancer a voice when

funding decisions are determined.

The STAR Act will help kids like St. Baldrick’s Ambassadors Julia

Alexander and Zach Swart. Both are passionate advocates and recently

joined hundreds of supporters on the Hill to fight for kids’ cancer

research.

Julia, 11, was diagnosed with a grade II ependymoma in her brain when

she was 8 years old. She bravely endured three major brain surgeries,

five minor surgeries, eight rounds of chemotherapy and two months of

radiation. Due to her cancer and treatment, Julia has had to learn to

write again and still struggles with her fine motor skills.

“When St. Baldrick’s first announced that the STAR Act passed

Congress, I immediately shed a tear. It meant so much to us that our

nation’s leaders are actively joining us in the fight against this

wretched disease,” said Julia’s mom, Melissa. “What overjoys us most

about the STAR Act is the survivorship component. Cancer parents

obviously worry about our children during treatment, but we are

terrified that they won’t have access to proper healthcare for the

numerous late effects they suffer in survival. The STAR Act will help

ensure there are programs in place for Julia and other pediatric

cancer survivors in the years to come, which lifts a huge burden off

parents’ shoulders.”

Zach, 16, was first diagnosed with acute lymphoblastic leukemia (ALL)

at 6 years old. Faced with limited treatment options after his second

relapse, Zach was declared cancer-free after being treated on a

clinical trial led by a St. Baldrick’s-funded researcher.

“Our son, Zach, has fought cancer three times and we are deeply

concerned about the possible late effects of the toxic chemotherapies

that he has endured to save his life from childhood cancer,” said

Zach’s mom, Nancy. “The STAR Act will enhance critical research on the

late effects of toxic therapies for childhood cancer survivors and

will promote progressive models of care for their continued health and

development.”

The passing of the STAR Act would not have been possible without

support from the childhood cancer community, including coalition

members, organizations, families affected by childhood cancer and

members of Congress.

“St. Baldrick’s is proud to have played a leading role in the advocacy

strategy that led to the passage of this breakthrough legislation,”

said Kathleen Ruddy, CEO of the St. Baldrick’s Foundation. “While the

Childhood Cancer STAR Act is a significant accomplishment toward

furthering children’s cancer research efforts, it is only the

beginning. We must now focus on making sure the bill is fully funded.

We look forward to working closely with our Hill Champions to create a

larger impact on the lives of kids with cancer.”

Help get the STAR Act fully funded by tweeting at your representatives

today.

For more information about St. Baldrick’s involvement in leading

advocacy efforts for the STAR Act, or to join the Speak Up For Kids’

Cancer network, visit www.StBaldricks.org/advocacy. To learn more

about St. Baldrick’s, visit www.StBaldricks.org, and connect

on Facebook, Twitter, YouTube or Vimeo.

About St. Baldrick’s Foundation As the largest private funder of

childhood cancer research grants, the St. Baldrick’s Foundation is

leading the charge to take childhood back from cancer. St. Baldrick’s

funds some of the most brilliant childhood cancer research experts who

are working to find cures and better treatments for all childhood

cancers. Kids need treatments as unique as they are – and that starts

with funding research just for them. Join us at StBaldricks.org to

help support the best childhood cancer research, no matter where it

takes place.

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SOURCE St. Baldrick’s Foundation

-0- 06/05/2018

/CONTACT: Traci Johnson, 626-792-8247 ext. 250, [email protected]

/Photo: https://mma.prnewswire.com/media/611258/St—Baldricks—Foundation—Logo.jpg

/Web Site: http://www.stbaldricks.org

CO: St. Baldrick’s Foundation

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